Raising a Hand for Rett
Three fabulous coffee table size books filled with amazing photgraphs of musical artists “Raising a Hand” for Rett. https://raisingahand.com/the-book/ If you love music, you’ll want to get all three!
Please check out https://raisingahand.com/
For over two decades, Houston-based photographer Dave Clements, along with his close friend Kevin Black and Kevin’s brother, Clint Black, have been raising awareness and funds for little-known Rett syndrome. Their inspiration for the project comes from Cortney Kevin’s daughter, who died in 2003 at age 16 from the debilitating disorder.
Dave and Kevin’s remarkable project is a trilogy, three black and white photography books each titled Raising A Hand (Volumes One, Two, and Three).
Incorporating unique design and exceptional photo-quality paper, the three coffee table books depict all the ways artists use their hands during a performance. Each of the artists in each of the books has given their permission to be included, understanding the underlying theme is that they, individually and collectively, are ‘raising a hand’ for Rett.
Volume One has 206 artists, Volume Two has 236 artists and Volume Three has 336 artists. Perhaps this three-book series is the largest collection of music photos in the world. For sure it is among the largest for a cause.
Rett syndrome is a devastating neurological disorder that strikes mostly girls, occurring in about one of every 10,000 female births worldwide. Like Cortney, these precious girls are born normal and advance as you’d expect, up to about 12-18 months, at which point they start to regress to infancy.
They lose their ability to walk. They lose their ability to talk and also lose meaningful hand motions. They spend the rest of their lives dependent on others for their care. They are referred to as Silent Angels because they cannot share what they are thinking or feeling– they cannot tell their mom or Dad that they love them, or verbalize their needs or wants.
“We want to help fund a cure so no one will have to go through what Kevin, his family, and thousands of other families have gone through with their Silent Angels,” Dave says.
Please join our photographic “music festival.” Help spread the word so that we can make Raising A Hand The Trilogy all that it can be. Researchers are closing in on a reversal. Please help us tell our story of hope for a cure.
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